Things are pretty ho-hum in the Gio Keto world. That's a good thing, right?
He's been eating well, seizures down to 3 or 4 a day, mainly at night...like usual. He's been wobbly on his feet lately. Not sure what's causing that other than the normal low tone/no balance Gio that we have grown to love. Drunken Sailor Gio can maneuver through the worst obstacle courses and not bump into things. Although, he has been licking the walls...again. He had stopped doing that a few years ago.
I think he likes the color green.
We went to the neurologist 2 weeks ago and normally after hearing what they have to say about Gio's prognosis, we usually worry.
This time, we learned he had gained 8 pounds since December...that's huge since the diet is a form of starvation just a huge amount of fat to keep from starving.
Then we learned the doctor wanted to run a few more tests because she thinks he may have another form of epilepsy called Dravet Syndrome. So, blood tests and urine tests happened...and we are waiting to hear.
But, Charlotte and I talked about this right after hearing the doctor tell us Gio might have something else, we didn't flinch. We didn't get upset, we didn't start asking questions. Both of us just sat there and said....OK.
At this point, what does it matter which epileptic syndrome Gio has? All we can do as parents is care for him through life, make him happy, keep him comfortable and enjoy the time we get to spend with him for however long that is.
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