Friday, December 17, 2010

Some Set Backs, but Great Promise

Immediately after the diet started, Gio either got a cold or the diet made him sick. We really aren't sure, but he and mom spent a day in the hospital after Gio started vomiting overnight. This was about 5 days after the diet started.
We were told this could happen and Charlotte was prepared. I was out of town but rushed home and when they released him from the hospital, he was fine...albeit very tired and somewhat lethargic. We have to watch his glucose levels very closely and his acid levels. Everyday, twice a day, we need to mix baking soda into water for him to drink.
What's been interesting so far is that Gio is apparently always thirsty. He chugs down water like it's going out of style...which is great because he needs about 50 ounces a day now!
We did find flavored water that has no sugar, no nothing and he is loving it!

So...what have we noticed now after 2 weeks?

Well...Gio is finally "back" with us. After more than a year of watching him decline mentally as well as physically, Gio has returned. He not only stands up and stands still, he is walking straighter and with purpose. He doesn't look as "drunk" as he used to.
His eyes are brighter and he responds to his name. He is back to pointing to parts of his body. He is actively taking part in his autism therapy again. He is no longer needing to sit in a chair with straps to hold him up straight. He walked up the stairs on his own the other day.
He is verbalizing by barking and wailing. While that used to bother me to know end, I am overjoyed to hear it. When your child goes silent for more than a year and suddenly starts to communicate again, however they communicate, the joy is overwhelming.
There is so much more and we see more everyday.

We are still seeing the nightly tonic seizures...and every two days he has one or two while wide awake. But, he isn't post-ictal (sp?) for very long anymore...he snaps out of it in a minute rather than an hour.
I wouldn't expect those to go away that quickly...again, he has only been on this diet for 2 weeks! There are nights where he has 4 or five tonic seizures as well.
BUT, the small constant seizures - 50 to 70 a day...nearly all day long, ARE GONE!

If this isn't a Christmas miracle...I'm not sure what is.


4 comments:

  1. I am so incredibly happy for your family. Seeing these improvements and gains is so incredibly inspiring. I am so excited to continue to read/hear/see what is in store for Gio!

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  2. A Christmas miracle indeed! So glad to hear this great news :-)

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  3. This is amazing news! Welcome back Gio, we've missed you!

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  4. Gio and family,
    We are rooting for you and for the Keto diet to be your answer.

    Anne at Lily's Fund

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